“Today we are getting rid of many stereotypes and prejudices, and that invites us to reflect a lot about disability, diverse bodies and everything different to accept it, embrace it and love ourselves,” says Daniela Aza (35 years old), who was born with congenital multiple arthrogryposis, a rare disease that affects the joints and doctors took a long time to recognize. After consulting many professionals and undergoing several operations, Daniela walked with prostheses until age 13, then with crutches and today she does it without help.
Your Instagram account,
Shine Bright, had a sweeping growth in 2019. With the language of social networks and a very unusual dynamic, seeks to bring down myths and taboos about women and disability. “We are not seen in areas such as fashion or fiction, we are nowhere.
There are many prejudices and stigmatization towards women with disabilities. When I want to buy clothes, it is very difficult to enter a fitting room and be comfortable. We are invisible and I just started telling“, explains this graduate in Social Communication from the UBA that quickly became a
“We are subject to the stereotype of the perfect body and we are compared to bodies that do not exist. We need to prove that our bodies are worth and that we are also beautiful,” he concludes.
Its Shine Bright site was born in May 2018 and a year later it became a trend due to its original way of communicating prejudices and the social invisibility of disability. Her followers began to tell her about her experiences and she invited them to look at disability as a goal to overcome.
Far from the idea of compassion, he proposed concrete actions to generate public policies of inclusion. It requires more adapted bathrooms, more accessibility in public places, accessible fitting rooms in clothing stores and more respect for the rights of people with disabilities.
The power of the word is a recurring theme in their stories and exerts a didactic look to change euphemisms and common places in people's speech. “The WHO defines disability as the relationship of an individual's condition with their environment. If I am covered with a car a ramp in the street, there I find an obstacle in my environment, my problem is not the problem,” he says.
He believes that the medical paradigm is obsolete and that the social and inclusive look will speak of people and not of deficiencies.
Daniela demands more adapted bathrooms, more accessibility in public places, accessible fitting rooms in clothing stores and more respect for the rights of people with disabilities.
With hashtags such as #QuieroProbadoresAccesibles or # DiagnnosisNoEsDestino, he went from having 300 to reach 8600 followers in just one year. Her publications are creative and motivating and are accompanied by photos of her at different stages of her life, always with a smile that invites action and not pity. Married a little over a year ago, she remembers how difficult it was to find her wedding dress.
“They find it hard to think that women with disabilities have the right to live a full life, that we fall in love, that we want, that we enjoy our sexuality and like to feel beautiful. There was no place where I could try on a dress,” Daniela explains.
The cruel gender brands that also affect them stand out. “We are subject to the stereotype of the perfect body and we are compared to bodies that do not exist.
We need to prove that our bodies are worth and that we are also beautiful. I am proud of my scars, they represent a story of struggle and overcoming. “
“It's always very easy to complain and difficult to get involved to change things.
I decided to use social networks, which are a super powerful tool to raise awareness“Daniela explains.
“I was mobilized by the hug and the words of some parents who told me that my experience had changed their way of looking at their son. My desire is to leave a mark for future generations and change the world view on disability. “
My wish is to leave a mark and change the look on disability
“In recent years there has been a rise of new debates and claims by many sectors.
But when it comes to the inclusion of women with disabilities, it remains a taboo subject: we are still stigmatized and not part of the debates in feminism, which is a great opportunity to talk about new groups“
In addition to the media and network success he picked up this year, thanks to his way of communicating,
He received the “Heroes of the People” award given by Chronicle for his inspiring and constructive message. She was also honored with the ALPI Biennial Award.
In one of Shine Bright's publications, a photo of her appears on graduation day, located between her parents. The three smile and radiate happiness. She is dressed in a fuchsia butterfly. Under that photo, Daniela wrote: “I hope you can become a butterfly to stop blaming everything that happens to free will and all the vague reasons that we can think of and assume the responsibility that most of the time you are who makes your destiny and who makes things look and perceive in one way or another. I think that this is how you will become an eternal butterfly. ”
This is what she expects and tells everyone who has a disability like her and has a slightly more difficult path.
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“And just when the caterpillar thought it was its end it became a butterfly” Alas. A butterfly costume? I used for my high school graduation and you can see a little in this photo. I was happy because, in addition to the dress, I had found the perfect outfit. And somehow I always identified with the butterflies. Maybe because they, the butterflies, tell us about transformation, change and evolution. Butterflies speak to us about freedom but above all they invite us to think that there can always be light ahead. . Because even with an uncertain destination and even when many times I could not with myself the first and only option was to fly. It was always flying. Become a butterfly I chose to become someone who is not locked in questions I could never answer but begins to wonder more about the purpose. And then I stopped questioning myself about what I can't control. And I began to do what was within my reach to give myself a meaning to what I lived, and live, and stop waiting for reasons that cannot come alone. I understood that while much has a cause, and that is why it is causality and not chance, many reasons do not come beforehand but it is we who give it. I became a butterfly because I could change, flow and evolve and understand that this confinement came only from the mind. That if the perspective changed everything changed color. . Hopefully you can become a butterfly to stop blaming everything that happens to free will and all the vague reasons that can occur to us and assume your responsibility that most of the time you are who makes your destiny and who makes things happen. See and perceive in one way or another. I think that this is how you will become an eternal butterfly. . . #reflections #Discapacity # DiagnosisNoEsDestino # overcoming #Resilience
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. (tagsToTranslate) It has disability (t) is influencer and seeks to break down prejudices from its social networks – LA NACION
Publicado en el diario La Nación